Ndizotheka kukhala ndi khansa ya m'chiberekero, nthawi ndiyofunika kwambiri pano ... Nkhani ya Dr. Hanna ngati chiyembekezo kwa amayi ena

Hanna ndi dokotala wazaka 40 zakuntchito. Kuzindikira kwake kufunika kolemba mayeso pafupipafupi ndikwambiri. Izi sizinamuteteze ku khansa ya ovary, komabe. Matendawa anayamba mkati mwa miyezi ingapo.

1. - Mu Meyi 2018, ndidamva kuti ndili ndi khansa yam'chiberekero - akukumbukira Ms Hanna. - Miyezi inayi m'mbuyomo, ndinapimidwa m'mimba yomwe sinasonyeze matenda
2. Monga momwe dokotala amavomerezera, adangomva kupweteka pang'ono m'mimba ndi mpweya. Komabe, iye anali ndi maganizo oipa, choncho anaganiza zoti amupimitse mwatsatanetsatane
3. Khansara ya Ovarian imapezeka chaka chilichonse ndi amayi a 3. 700 a ku Poland. Khansara nthawi zambiri imatchedwa "wakupha mwakachetechete" chifukwa simawonetsa zizindikiro zodziwika msanga
4. Khansara ya m'mawere si chilango cha imfa. Kukula kwa pharmacology kumatanthauza kuti matendawa amatha kutchedwa kuti osatha komanso ochiritsika. The PARP inhibitors amapereka chiyembekezo cha mankhwala othandiza
5. Zambiri zaposachedwa zitha kupezeka patsamba lofikira la Onet.

Zizindikiro zake zinali zosawoneka ...

Hanna ndi dokotala atakwanitsa zaka 60, zomwe kafukufuku wapachaka wa transvaginal ndiye maziko a kupewa matenda a oncological. Choncho, kutulukira kwa khansa ya m’chiberekero kunamudabwitsa kwambiri. Zowonjezereka chifukwa zizindikiro sizinali zenizeni ndipo zotsatira za morphology zinali zachilendo. Zomwe ankangomva zinali kupweteka pang'ono m'mimba ndi kutupa, osaonda. Komabe, iye ankada nkhawa ndi zinazake, choncho anaganiza zomuyesanso.

Zaka ziwiri zapitazo, mu May 2018, ndinamva kuti ndinali ndi khansa ya m'mawere ya IIIC. Sindinathe kudziteteza, ngakhale kuti sindinanyalanyaze mayeso anga odziteteza ku matenda achikazi. Ndinalimbikitsidwa kuti ndidziwe zambiri za matenda achilendo, osati kupweteka kwambiri mu hypochondrium yoyenera. Miyezi inayi m'mbuyomo, ndinapimidwa m'njira yodutsa m'chiberekero ndipo sanasonyeze kuti pali vuto lililonse. Kudzimbidwa kumayamba pakapita nthawi. Ndinkangokhalira kukhumudwa nthawi zonse. M'mutu mwanga munali kuwala kofiira. Ndinkadziwa kuti sizinali momwe ziyenera kukhalira, choncho ndinafufuza mutuwo, kufunafuna chomwe chimayambitsa zizindikiro zoterezi. Anzangawo pang’onopang’ono anayamba kunditenga ngati munthu wa hypochondriac, akundifunsa kuti, “Kodi kwenikweni mukuyang’ana chiyani kumeneko? Ndipotu, zonse ndi zabwinobwino! ». Mosiyana ndi ndemanga zonse, ndinabwereza mayesero angapo. Panthawi ya ultrasound ya chiuno chaching'ono, anapeza kuti pali chinachake chosokoneza ovary. Kukula kwa tsokali kunawululidwa kokha ndi laparoscopy ndi kutembenuka kwa kutsegula kwathunthu kwa mimba ndi opareshoni ya maola 3 yochitidwa ndi gulu la prof. Panka - amagawana zomwe adakumana nazo ndi dokotala.

Kuzindikira kwa khansa ya ovarian kumaperekedwa chaka chilichonse mpaka pafupifupi. 3 zikwi. 700 Polish akazi, amene pafupifupi 80 peresenti. ali ndi zaka zoposa 50. Komabe, izi sizikutanthauza kuti matendawa sakhudzanso atsikana ndi atsikana. Khansara ya m'chiberekero nthawi zambiri imatchedwa "wakupha mwakachetechete" chifukwa ilibe zizindikiro zodziwika msanga. Ili pa malo achisanu pamndandanda wa ma neoplasms owopsa omwe amapezeka pafupipafupi padziko lonse lapansi. Kuopsa kwa chitukuko chake kumawonjezeka kwambiri mwa amayi olemedwa ndi majini, mwachitsanzo ndi kusintha kwa majini a BRCA1 kapena BRCA2, monga momwe zilili mu 44% ya amayi. onyamula jini yolakwika amakhala ndi matenda oopsa ...

Nditamva za matendawa, zambiri zasintha pamoyo wanga. Panali zinthu zomwe ndinayenera kuzipendanso. Poyamba ndinkachita mantha kwambiri kuti ndisiya okondedwa anga. Komabe, m’kupita kwa nthaŵi ndinaganiza kuti sindidzataya mtima ndipo ndidzimenyera ndekha nkhondo, chifukwa ndili ndi munthu woti ndizimukhalira moyo. Nditayamba kumenyana, ndinamva ngati mphete yomwe mdaniyo anali khansa ya ovarian - khansara yoyipa kwambiri ya amayi ku Poland.

1. Azimayi amalingalira kuti ndi vuto la m'mimba. Nthawi zambiri amakhala mochedwa kwambiri kuti alandire chithandizo

Chiyembekezo Chatsopano mu Chithandizo cha Khansa ya Ovarian - Poyambirira Ndi Bwino

Chifukwa chaukadaulo wapamwamba komanso kupita patsogolo kwa kafukufuku, khansa ya m'mawere sikuyenera kukhala chilango cha imfa. Kukula kwa pharmacology kumatanthawuza kuti matendawa amatha kutchedwa kuti ndi aakulu komanso otheka komanso ochiritsidwa.

PARP inhibitors amapereka mwayi wotere wochiza khansa ya ovarian. Mankhwala omwe atsimikizira kuti amagwira ntchito bwino, opereka zotsatira zochititsa chidwi pakukulitsa moyo wa odwala omwe ali ndi khansa ya ovarian, adawonetsedwa pamisonkhano yayikulu yazachipatala padziko lonse lapansi - American and European Society of Clinical Oncology - ASCO ndi ESMO. Woimba wodziwika bwino wa ku Poland dzina lake Kora, yemwe akudwala khansa ya ovarian, adamenyera kubwezera kwa mmodzi wa iwo - olaparib. Tsoka ilo, khansa yake inali pamlingo wapamwamba kwambiri kotero kuti wojambulayo adataya nkhondo yosagwirizanayi pa July 28, 2018. Ndi zochita zake, komabe, adathandizira kubweza mankhwalawo, omwe, ngakhale kuti anali ndi phindu lalikulu lachipatala, akuphimbabe nawo. yopapatiza gulu la odwala, mwachitsanzo okhawo amene kukumana muyambirenso khansa.

Mu 2020, pa umodzi mwa ma congresses azachipatala - ESMO, zotsatira za kafukufuku wa mankhwala olaparib omwe amagwiritsidwa ntchito kumayambiriro kwa matendawa, mwachitsanzo, mwa odwala omwe angopezeka kumene khansa ya ovarian. Akuwonetsa kuti pafupifupi theka la amayi omwe ali ndi vuto ngati Ms Hanna amakhala osapitilira zaka 5, zomwe ndi zaka 3,5 kuposa pano poyerekeza ndi kusowa kwa chithandizo chamankhwala. Madokotala ambiri amakhulupirira kuti ndi mtundu wa kusintha kwa mankhwala a khansa yamchiberekero.

Dr. Hanna atangomva za matendawa anayamba kutsatira kafukufuku wa mamolekyu atsopano mu khansa ya ovary. Kenako adapeza zotsatira zabwino za mayeso a SOLO1 ndi olaparib, zomwe zidamupangitsa kuti ayambe kulandira chithandizo.

Zotsatira zomwe ndinaziwona zinali zodabwitsa! Zinandipatsa chiyembekezo chachikulu kuti matendawo - khansa ya m'mawere simathero a moyo wanga. Ndinadzilembera ndekha mapaketi awiri oyamba a mankhwalawa ndikulipira chithandizo kwa miyezi ingapo mothandizidwa ndi achibale anga ndi anzanga chifukwa Unduna wa Zaumoyo unakana kundipatsa ndalama. Ndinachita mwayi kuti ndilembetsedwe mu pulogalamu yopezera mankhwala mwachangu ndi ndalama zoperekedwa ndi wopanga. Ndinali kumwa Olaparyb kwa miyezi 24. Tsopano ndakhululukidwa kwathunthu. Ndikumva bwino kwambiri. Ndilibe zotsatira zoyipa. Ndikudziwa kuti pakadapanda chithandizochi, sindikadakhalaponso… Pakali pano, ndimagwira ntchito mwaukadaulo, ndimayesetsa kuchita masewera olimbitsa thupi pafupipafupi komanso kusangalala ndi mphindi iliyonse ya “moyo watsopano” ndi mwamuna wanga. Sindikukonzekeranso kalikonse, chifukwa sindikudziwa zomwe zidzachitike m'tsogolo, koma ndikusangalala kwambiri ndi zomwe ndili nazo. Moyo.

Akazi a Hanna, monga dokotala woleza mtima komanso wodziwa zambiri, akugogomezera kuti ngakhale kuti amadziwa za cytology ndi kufufuza m'mawere, chidwi chochepa chimaperekedwa ku khansa ya ovari. Mofanana ndi khansa iliyonse, "kusamala kwa oncological" ndi kumvetsera thupi lanu ndizofunikira, makamaka popeza palibe njira zothandiza zodziwira msanga khansa ya ovarian. Pankhani ya odwala omwe apezeka kale, ndikofunikira kuwonetsetsa kuti ali ndi zida zoyezera matenda, makamaka kuyesa zosintha zamtundu wa BRCA1/2 mwa amayi odwala. Kuzindikira kusinthika kumeneku, choyamba, kungakhudze kusankha kwa chithandizo choyenera kwa wodwalayo, ndipo kachiwiri, chikhoza kuthandizira njira yodziwikiratu anthu ochokera ku gulu lachiwopsezo (banja la wodwalayo) ndikuwaika pansi pa kuyang'anira oncological nthawi zonse.

Kufewetsa: Podziwa za masinthidwewo, tingalepheretse banja lathu kuzindikira khansa mochedwa. Monga momwe Dr. Hanna akugogomezera, tikulimbanabe ndi kunyalanyazidwa kochuluka pa chithandizo cha khansa iyi, kuphatikizapo: kusowa kwathunthu, malo apakati, mwayi wochepa wopeza matenda a maselo ndi mankhwala, komanso ngati khansa ya ovari, masabata kapena masiku. kuwerenga…

Kutengera zomwe ndakumana nazo, ndikudziwa kufunikira koyambitsa malo opangira chithandizo cha khansa ya ovarian, omwe adzapereka chithandizo chokwanira komanso kuzindikira, makamaka chibadwa. Kwa ine, ndinakakamizika kuchita mayeso atsatanetsatane m'malo osiyanasiyana osiyanasiyana ku Warsaw. Choncho n’zosatheka kuganiza kuti kwa odwala ochokera m’mizinda ing’onoing’ono, kutulukira matenda mwamsanga kungakhale kovuta kwambiri . . . wa ndondomeko. Kuyeza kwa majini kudzatipatsa mwayi kwa odwala kuti alandire chithandizo choyenera, ndipo ana athu aakazi ndi zidzukulu zidzatithandiza kupewa kupewa msanga.

Dr Hanna, wophunzitsidwa ndi zomwe adakumana nazo, akugogomezeranso kufunikira kwa kafukufuku wozama, ngakhale ngati maziko a morphology ndi cytology samawonetsa chilichonse chosokoneza. Makamaka pamene mukumva kusapeza zokhudzana ndi kudzimbidwa ndi flatulence. Odwala sayenera kuyiwala kupanga transvaginal ultrasound ndikuwona kuchuluka kwa zolembera zotupa za CA125.

1. Wakupha akazi aku Poland. “Kansa Sitingathe Kuizindikira Mofulumira”

Kodi mungapite kuti mukapeze chithandizo?

The matenda a khansa nthawi zonse limodzi ndi mantha ndi nkhawa. Nzosadabwitsa kuti pamapeto pake, usiku wonse, odwala akukumana ndi mfundo yakuti ali ndi miyezi ingapo kapena masabata kuti akhale ndi moyo. Zinalinso chimodzimodzi ndi ine. Ngakhale ndine dokotala, mbiri ya matendawa idandigwera mwadzidzidzi komanso mosayembekezereka ... Patapita nthawi, ndinazindikira kuti chofunika kwambiri tsopano ndi nthawi ndipo ndiyenera kuyamba kumenyera moyo wanga. Ndinkadziwa kuti ndipite kwa ndani komanso mankhwala oti ndiyenera kumwa. Koma bwanji za odwala amene sadziŵa kumene angakapeze chithandizo? The # Coalition for Life of people with the BRCA 1/2 mutation, omwe cholinga chawo ndi kufulumizitsa ndi kukonza njira zodziwira matenda ndi chithandizo cha odwala, motero kuwonjezera moyo wawo, amatuluka kuti athandize amayi omwe ali ndi khansa ya ovari.

# CoalitionForLife ya anthu omwe ali ndi kusintha kwa BRCA1 / 2

Othandizira ogwirizanawo akupereka malingaliro atatu ofunika kwambiri.

1. Kupeza kosavuta kwa Next-Generation Sequencing (NGS) kuwunika kwa maselo. Chidziwitso chowonjezereka cha sayansi chokhudza zolembera zotupa ziyenera kuthandizira kupangidwa kwamankhwala amunthu payekha, ndiko kuti, mankhwala ogwirizana ndi wodwala aliyense. Next-Generation Sequencing ndi chida chodziwikiratu. Choncho, m`pofunika kuonjezera chiwerengero cha kuyezetsa maselo anachita m`malo kuchita opaleshoni khansa yamchiberekero. Sikofunikiranso kupanga Internet Patient Account (IKP), komwe deta pazotsatira zonse za ma genetic, pathomorphological and molecular test zidzasonkhanitsidwa pamalo amodzi. 
2. Kupititsa patsogolo ubwino ndi kupezeka kwa chithandizo chokwanira. Chisamaliro chokwanira kwa wodwala yemwe wapezeka ndi khansa ya ovarian ndikofunikira. Mwayi wopititsa patsogolo chithandizo chawo umaperekedwa poyambitsa gulu la akatswiri osiyanasiyana ku zipatala. Yankho lingakhalenso kukhazikitsa mayankho a tele-medicine.
3. Kugwiritsa ntchito njira zochizira zogwira mtima, mogwirizana ndi miyezo yaku Europe, kumayambiriro kwa matendawa mwa amayi omwe akudwala khansa ya ovari.

Ogwirizana nawo akuyesera kuti abwezeretse ndalama za mankhwalawa kuti atsimikizire chithandizo pa nthawi yoyambirira ya matendawa - malinga ndi miyezo ya ku Ulaya ya njira zothandizira.

Zambiri zokhudzana ndi khansa ya m'mawere ndi zochitika za omwe amagwirizana nawo akupezeka patsamba la www.koalicjadlazycia.pl. Kumeneko, odwala khansa ya ovarian adzapezanso adilesi ya imelo komwe angapeze chithandizo chofunikira.

Werenganinso:

1. "Kupita patsogolo kwa khansa ya m'mimba mwa amayi a ku Poland ndikokwera kwambiri kuposa Kumadzulo" Pali mwayi wothandizira kwambiri
2. Zizindikiro zoyamba za khansa ndizosawoneka bwino. "Odwala 75 peresenti amabwera kwa ife pamlingo wapamwamba kwambiri"
3. Chotupa chobisika. Palibe chomwe chimapweteka kwa nthawi yayitali, zizindikiro zimafanana ndi mavuto am'mimba

Musanagwiritse ntchito, werengani kapepala kamene kali ndi zizindikiro, contraindications, deta pa zotsatira zoyipa ndi mlingo komanso zambiri za ntchito mankhwala, kapena funsani dokotala kapena wamankhwala, monga aliyense mankhwala ntchito molakwika ndi kuopseza moyo wanu kapena thanzi. Kodi mukufuna kukaonana ndichipatala kapena e-prescription? Pitani ku halodoctor.pl, komwe mungapeze thandizo pa intaneti - mwachangu, motetezeka komanso osachoka kunyumba kwanu. Tsopano mutha kugwiritsa ntchito e-consultation komanso kwaulere pansi pa National Health Fund.