Iwo anathawa kunkhondo. "Ndinkaphunzira kugwiritsa ntchito chemistry kuchokera pa intaneti"

20 yapita. "Chipatala cha pa njanji", sitima yapamtunda yokhala ndi ana ochokera ku our country, ifika pamalo okwerera sitima ku Kielce. Odwala ochepa amadwala khansa ndi matenda a magazi. Pakati pawo palinso Danyło wazaka 9 wa ku Sumy, amayi ake Julia ndi mlongo wake Valeria. Mnyamatayo ali ndi hair cell astrocytoma. Palibe kuyenda, palibe kumverera kuchokera mchiuno kupita pansi. Nkhondo itayamba, iye ankalandira chithandizo chamankhwala. Chithandizo chake chidzapitirira chifukwa cha St. Jude, Herosi Foundation ndi Polish Society of Pediatric Oncology and Hematology, motsogoleredwa ndi prof. Wojciech Młynarski.

1. Danyło anali asanakwanitse zaka eyiti pamene anapezeka ndi khansa. Kupanikizika kwa chotupacho kunapangitsa mnyamatayo kutaya mphamvu kuchokera m’chiuno kupita pansi
2. Pamene asilikali anaukira our country, Danyło anali kulandira mankhwala amphamvu. Banjali linayenera kuthawa. Kuti mankhwala apitirire, mayi ake adamupatsa okha ma drip. Ndi makandulo ndi nyali tochi
3. Mayi ake a Danyło, a Julia, anadziŵa za kupulumutsidwa pa Intaneti. Mnyamatayo adanyamuka panjira yowopsa yopita ku Unicorn Clinic. Marian Wilemski ku Bocheniec
4. Kodi chikuchitika ndi chiyani ku our country? Tsatirani kuwulutsa kwamoyo
5. Zambiri zitha kupezeka patsamba lofikira la Onet

Anayenera kuthawa s. "Ndinkaphunzira kugwiritsa ntchito chemistry kuchokera pa intaneti"

Danylo wa ku Sumy, ku our country, anali wamng’ono pamene anazindikira kuti chilakolako chake chinali chokwera njinga. Anali ndi angapo a iwo, amalakalaka kukhala woyendetsa njinga mtsogolo. Kenako china chake choipa chinayamba kuchitika. Minofu ya miyendo yake inakana kugwirizana, anayamba kufooka. Nthawi yomweyo makolo ake anamutengera kwa dokotala. Mayeso angapo adayamba, mnyamatayo adatumizidwa kuchokera kwa katswiri wina kupita kwa wina. Palibe amene ankadziwa kuti vuto linali chiyani. Komabe, makolowo sanafooke ndipo anapitiriza kufunafuna mayankho. Izi zidapezeka mu Marichi 2021. Matendawa anali owopsa: hair cell astrocytoma. Chotupacho chili mumsana wa mnyamatayo. Pa nthawiyo n’kuti asanakwanitse zaka eyiti.

Danyło anamtengera kuchipatala ku Kiev, kumene anachitidwa opaleshoni. Chotupacho chinachotsedwa, koma pang'ono chabe. Mnyamatayo anali kuchira ndipo anali kukonzanso, zomwe sizinabweretse zotsatira zomwe ankayembekezera. Nyengo ya tchuthi mu 2021 idabweretsa nkhani ina yomvetsa chisoni kubanja: chotupacho chayambanso kukula. Choncho, madokotala anaganiza zopatsa mwanayo mankhwala amphamvu. Danyło anali kulandira chithandizo pamene Dziko Lathu linaukira our country. Anali atangomutenga kwa milungu iwiri yokha.

Panthawi ya kuphulika kwa mabomba, Danyło anali pansanjika yachisanu ya chipatala cha Sumy. Nthawi zonse kulira kwa ma siren kunkalira, mnyamatayo ankafunika kupirira yekha ndiyeno n’kunyamulidwa m’mwamba. Choncho, kunali koyenera kupanga chisankho chachikulu: banja lomwe linali ndi mnyamata wodwala linanyamuka kupita ku mzinda umene anachokera, 120 Km. Chifukwa cha mmene zinthu zinalili, ulendowu unatenga maola 24. Ankayenera kupuma m’nyumba za alendo – anthu abwino amene anawapatsa pogona.

- Titafika kumudzi kwathu, tinayenera kupitiriza mankhwala a chemotherapy tokha - akutero Julia, amayi a Danyło, poyankhulana ndi Medonet. - Ndine wophika, osati namwino kapena dokotala. Sindinadziwe momwe ndingachitire. Ndinali kuphunzira kuyang'anira chemistry kuchokera pa intaneti. Tinalibe magetsi, choncho zonse zinkachitika ndi makandulo ndi tochi. Imeneyi inali njira yokhayo imene ndinatha kuona ngati madziwo akufika m’mitsempha ya mwana wanga.

Danyło ali ndi mlongo wina wazaka 8 dzina lake Valeria. Pamene ankalandira chithandizo, mayi anga anaganiza zowalekanitsa abalewo. Msungwanayo adakhala ndi agogo ake, komwe adakhala m'chipinda chapansi kwa milungu iwiri.

– Iye sankadziwa ngati usana kapena usiku. Munalibe madzi kapena magetsi, mulibe chimbudzi. Anayenera kuthana ndi chidebecho - akutero Julia.

Patatha mwezi umodzi ndi gawo loyamba la mankhwala a chemotherapy, Julia adapeza pa intaneti kuti maziko ochokera ku our country akukonzekera kusamutsidwa kwa ana omwe ali ndi khansa kupita ku Poland. Komabe, kuti ulendowu ukhale wotheka, wodwalayo ayenera kukhala ku Kiev kapena Lviv. Mzinda umene analimo unazunguliridwa ndi s. Kuthawa kunali kogwirizana ndi chiopsezo chachikulu - panali matupi a akufa m'misewu, kuphatikizapo ana.

- Panthawiyo, panalibe makonde obiriwira omwe amalola kuti atuluke mumzindawu. Njira yokhayo inali magalimoto apadera a anthu omwe adakonza maulendo awo ku Kiev. Inali nkhondo yachigawenga, yopanda chitsimikizo chakuti njirayo idzakhala yotetezeka. Titha kulowa, koma mwangozi yathu. Sindinkadziwa ngati tikafika kumeneko tili amoyo, koma sitinachitire mwina.

Julia anatenga Valeria ndi Danyło n’kunyamuka. Mwamuna wake anali atalembedwa kale usilikali. Pa nthawi yonse imene mwana wake wodwala anali kumudzi, iye anali wotetezeka. Angakhale pafupi ndi banja lake, kumanga mipanda ndi kuteteza mzindawo. Kuchoka kwa ana ndi mkazi wake kunatanthauza kuti tsopano akanatha kutumizidwa ku mishoni kulikonse m’dzikolo.

Banjalo linafika ku Kiev mosangalala, kumene anasamutsidwa kupita ku Lviv. Chipatala chakumaloko chikukonzekera kusamutsidwa kwa odwala achichepere kupita ku Poland, komwe chithandizo chawo chingapitirizidwe.

- Danyło anali mnyamata wathanzi, wokondwa. Cholinga changa n’chakuti akalandire chithandizo kuti akhalenso wathanzi komanso kuti azitha kukwera njinga. Atataya mtima, anatipempha kuti tim’sungire m’chishalo. Miyendo yake sinali kugwira ntchito, inkatsika pamapazi. Tinkawamamata ndi tepi kuti amve ngati mmene ankachitira poyamba. Iyi ndi filimu yowopsya yomwe palibe banja liyenera kukhala nalo. Ndipo tili ndi izi ndi nkhondo. Ndikufuna kupita kwathu ku our country. Kwa mwamuna wanga, banja, kudziko lakwathu. Ndine woyamikira kwambiri kuti tsopano tili ku Poland, kuti Danyło akalandira chithandizo. Ndipo ndikupemphera kuti palibe mayi wa ku Poland amene adzakumane ndi zomwe ndikuchita. Chonde Mulungu.

Kuyima pamsewu wa Danyło, pamene ndinatha kukumana ndi mnyamatayo ndi banja lake, anali chipatala cha Marian Wilemski Unicorn ku Bocheniec pafupi ndi Kielce. Kuchokera kumeneko, mnyamatayo adzapita ku Netherlands, kumene akatswiri adzamuthandiza kuti achire.

Nkhani yonse ikupezeka pansi pa kanema.

Pansi pa mapiko a unicorn. Chipatalachi chalandira kale mazana angapo odwala ang'onoang'ono

Ndisanafike ku Unicorn Clinic kwa iwo. Marian Wilemski, ndikukonzekera zokumana nazo zovuta kwambiri. Kupatula apo, ndi malo omwe mabanja 21 adathawa ku our country adabwera dzulo lake ndipo anali kulimbana ndi zowawa zankhondo zokha, komanso matenda oopsa a ana awo. M'malo mwake, zimakhala zosiyana kwambiri. Zipinda zokonzedwanso ndi makonde a malo akale a tchuthi a "Wierna" ku Bocheniec amadzaza ndi chisangalalo, ana othamanga ndi nkhope zomwe zimamwetulira nthawi zonse. Madokotala, odzipereka ochokera ku Herosi Foundation, komanso odwala achinyamata ndi mabanja awo. Ndipo izi sizongowoneka chabe: "mtolankhani akubwera".

- Ili ndilo ulendo wachisanu ndi chinayi umene talandira - akufotokoza Julia Kozak, wolankhulira St. Jude. - Nthawi iliyonse imayenda bwino kwambiri. Timaphunzira pafupipafupi momwe tingakonzekerere kuti ikhale yogwira mtima komanso yopanda nkhawa. Odwala ali ndi "check-up" pakhomo. Amawunikiridwa ndi madokotala ndi anamwino limodzi ndi womasulira. Pasanathe ola limodzi ali kale m'zipinda zawo, posakhalitsa amatha kupita kukadya pamodzi (kapena kudya m'chipinda chawo, ngati chikhalidwe cha mwanayo sichilola kuyenda kwaulere). Tonse tinayenera kuphunzira mphamvu ya kumwetulira pano. Ali ndi nkhawa zawo, ndizovuta kwa iwo. Sitingawonjezeko zakukhosi kwathu kwa iwo. Ndicho chifukwa chake ndizosangalatsa pano - aliyense, ngakhale madokotala ndi anamwino, amasewera ndi ana ndi opusa pozungulira. Cholinga chake ndi chakuti adzimva kukhala otetezeka, odekha komanso osamalidwa - akuwonjezera.

Kukhalapo kwenikweni kwa Unicorn Clinic ndi nkhani yapadera yomwe iyenera kudziwa. Zonsezi zinayamba pamene mmodzi wa St. Jude Ana Research Hospital, mankhwala. Marta Salek, anabwera ku Poland kuchokera ku Canada kudzatsazikana ndi agogo ake akufa. Atafika m'dziko lathu, adamva za kuukira kwa Dziko Lathu ku our country. Posakhalitsa, adalandira foni kuchokera kwa abwana ake akumufunsa ngati angagwirizanitse ntchitoyi kuti athandize ana odwala ochokera ku our country, chifukwa ndi yekhayo wantchito yemwe amadziwa Chipolishi pamlingo winawake. Mkuluyo sanadziwe kuti Marita ali kumeneko. Kenako zonse zinachitika mofulumira kwambiri. Dokotala (yemwe ali m'kati mwa akatswiri a oncology ya ana) adalumikizana ndi Małgorzata Dutkiewicz, pulezidenti wa Heroes Foundation, yemwe anali wachilendo kwambiri kwa iye.

- Ndipo pamene ndinamva kuti St. Jude akusowa ine, ine kwenikweni anaima pa tcheru. Ndimalemekeza kwambiri chipatalachi. M’nyumbayi muli chikwangwani chonena kuti palibe mwana amene adzakanidwe, mosasamala kanthu za mtundu kapena mikhalidwe. Ndipo zomwe zikuchitika tsopano ku Bocheniec ndi umboni wabwino kwambiri, wowoneka bwino wa izi. Chipatalacho chinatsegulidwa pa March 4. Kalelo, pamene Marta, yemwe masiku ano ali ngati mlongo wanga, yemwe anali mlendo, anaika m’manda agogo ake. Ndicho chifukwa chake ali ndi dzina la Marian Wilemski - kulemekeza kukumbukira kwake. Ndipo unicorn? Ndi nyama yopeka yomwe imadziwika ndi machiritso amatsenga. Tikufuna kuthandiza ntchito zamatsengazi.

Chipatala ku Bocheniec si malo azachipatala. Si chipatala kumene njira yochiritsira imachitika.

- Ndife malo atatu komwe ana omwe ali okhazikika amapita - akufotokoza Marta Salek. - Zikapezeka pamalire kuti amafunikira kuchipatala mwachangu, samapita ku Bocheniec, koma mwachindunji kumodzi mwama posts ku Poland. Ntchito yathu ndi kuvomereza ana, kuwazindikira, ndikuwatsogolera kumalo enaake. Tsopano, kumlingo waukulu, awa ali malo kunja kwa Poland. Osati chifukwa mwayi pano ndi wochepa kwambiri. Oncology yaku Poland ili pamlingo wapamwamba kwambiri. Koma tizikumbukira kuti dongosolo la Poland lalandira kale pafupifupi. 200 odwala ang'onoang'ono ku our country. Malo akungotha - iye amakwaniritsa.

«Ana awa ndi odwala omwe ali osalimba kwambiri. Sitikudziwa momwe nkhondo idzakhudzire chithandizo chawo »

Marta Salek waku Canada si katswiri yekha wakunja yemwe amasamalira ana ku Bocheniec. Alex Müller, dokotala wa oncologist wa ku Germany, alinso m'gululi.

- Ndinapeza kuti timafunikira thandizo ndipo ndinali ku Poland mkati mwa masiku atatu - akutero. - Tili ndi ana omwe ali ndi khansa ya m'magazi, mitundu yosiyanasiyana ya khansa, komanso matenda a hematological. Sikuti timangovomereza odwala omwe ali ndi matenda enieni. Sitikusiyanitsanso ngati awa ndi khansa yomwe yangopezeka kumene kapena ngati ndikupitilizabe chithandizo chomwe chakhazikitsidwa kale.

Ana amapita ku Bocheniec kuchokera kuchipatala ku Lviv, koma amachokera kumadera osiyanasiyana ku our country. Pakati pa Lviv ndi mtundu wa maziko a mabanja amene anamva za chipatala. Ndipo nkhani imeneyi imaperekedwa pakamwa ndi pakamwa ngati nkhani yabwino.

- Madokotala ku Lviv amachita ntchito yodabwitsa yopitilira chithandizo mumkhalidwe wovutawu. Palibe chomwe chimagwira ntchito ku our country monga kale, koma chifukwa cha iwo kupitiriza kwa chithandizo kumasungidwa. Kuwonjezera apo, amakonzekeretsa odwala ulendo wopita ku Poland pomasulira makhadi awo a matenda. Chotsatira chake n’chakuti sitiyenera kuda nkhawa ndi kumasulira kuchokera ku Chiyukireniya. Timapeza zonse zofunika nthawi yomweyo - akufotokoza.

Katswiriyu akugogomezeranso kuti kupatula chithandizo cha oncological chokha, ana ndi achibale awo adzafunikanso chithandizo chamaganizo chokhudzana ndi zoopsa za nkhondo.

– Ana awa ndi odwala kwambiri wosakhwima. Zovuta kwambiri, zomwe zimafuna chitonthozo panthawi ya chithandizo. Zoonadi kupsyinjika ndi katundu pa thupi. Sitikudziwa momwe nkhondoyo idzakhudzire chithandizo chawo. Palibe aliyense wa ife amene angamvetse mmene ana amenewa ndi mabanja awo akumvera. Ine sindikuganiza kuti tingathe ngakhale kulingalira izo. Tikuchita zonse zomwe tingathe kuti zinthu zikhale bwino tsopano. Koma ndithudi, kuwonjezera pa chithandizo chamankhwala, chithandizo chamaganizo chidzafunikanso.

Ntchito zachipatala ndizotheka chifukwa cha zopereka zochokera padziko lonse lapansi. Aliyense atha kupereka zopereka ku akaunti ya Herosi Foundation:

1. PKO BP SA: 04 1020 1068 0000 1302 0171 1613 Fundacja Herosi, 00-382 Warsaw, Solec 81 B, lok. A-51

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1. Thandizo laulere lachipatala kwa anthu ochokera ku our country. Kodi chithandizo mungachipeze kuti?
2. Anasokoneza chithandizo chake pothawa ku our country. Madokotala aku Poland adayika 3D prosthesis
3. Wogulitsa mankhwala ku Kharkiv anapulumuka bomba. Amagwira ntchito ngakhale atavulala kwambiri kumaso