Ana aakazi a Distilbène
Agnes
“Ndine mtsikana wa DES, mlongo wanganso. Ndinali ndi khansa yapakhungu ndili ndi zaka 25, koma ulalo ndi DES sukuwonekera. Ndinapita padera kasanu ndisanaleredwe. Sitinapite kumapeto kwa ndondomekoyi (masiku 15 kuchokera pa mphoto) chifukwa ndinali ndi pakati ndipo sindinathe kutenga chiopsezo chopita ku China m'dera langa. Njira zonse zodzitetezera zatengedwa: kupumula kwa bedi kuyambira pachiyambi cha mimba, kutanthauza kuchoka kwa odwala. Ndinapanga chiwopsezo cha kubereka msanga mozungulira masabata a 18 a amenorrhea ndipo ndinagonekedwa m'chipatala kwa miyezi 4 ndi theka (kuphatikiza miyezi 2 200 km kuchokera kunyumba ndi mwezi umodzi 100 km).
Benoît anabadwa pafupifupi masabata a 37, pamene ndinayamba kuyenda ndi kukwera masitepe kachiwiri. Anali 45 cm ndi 2,5 kg (sikanathanso kukula m'chiberekero changa chodzaza). Benoît ali ndi thanzi labwino koma ayenera kuyang'anitsitsa impso yake yakumanzere, mwina adzachitidwa opaleshoni ali ndi zaka 2. Kuwonongeka kwa impso zake kungakhale kokhudzana ndi chithandizo chomwe analandira panthawi yomwe anaopsezedwa pobereka mwana pamene ndinachepetsedwa kukhala amniotic fluid kuti athetse chiberekero. Kapena mwina zotsatira za DES pa m'badwo wachitatu, sitikudziwa ...
Nditapita padera kachisanu ndi chimodzi, ndili ndi pakati pa milungu 13. Ndamangidwanso ndipo ndili chigonere. Ndikufuna kupewa chipatala kuti ndisamalire osachepera Benoît yemwe ali ndi miyezi 19. Tangosamukira kudera latsopano kutsatira kusamutsa akatswiri. Chipatala cha Level 3 chili pamtunda wa makilomita 70 okha koma, kumbali ina, tilibenso achibale kapena anzanga oti andithandize ndili pabedi. Mimba imalonjeza kukhala yovuta kwambiri mwadongosolo ... "
Laure
"Ndine msungwana wa distilbene, zomwe kwa ine zimatanthawuza kuwonongeka kwa thupi, mimba ya ectopic, chithandizo chamitundumitundu, kubereka, IVF ... Ndili ndi mwana wamkazi wazaka 8 ndi theka yemwe ndinakhala naye titamenyana. Ndinaganizanso zoyambitsanso nkhondoyi zaka ziwiri zapitazo ndikuyembekeza kubwereza chozizwitsacho. “
Virginia
“Ndine mwana wamkazi wa distilbene, wobadwa mu 1975, chotero pamapeto a mankhwala anga kuchokera pamene mankhwalawa analetsedwa mu 1977. Ndinapita padera ndi mimba zitatu za ectopic. Nditachita ntchito yofulumira yothandiza anthu kubereka, panopa ndili ndi mwamuna wanga, tikulera ana.
Ndine membala wa bungwe la "Les filles DES" ndipo ndizowona kuti chiwerengero chachikulu cha amayi omwe akukhudzidwa amatsatiridwa bwino pa ntchito yawo, sadziwana wina ndi mzake kapena akuyenera kukanidwa ndi dziko lachipatala. “
Valerie
"Ndili ndi zaka 42 ndipo amayi anga adamwa distilbene nthawi yonse yomwe anali ndi pakati. Ndili ndi zaka 28, pamene ndinali ndi pakati, ndinazindikira kuti ndinali ndi khansa ya pachibelekero. Kenako ndimayenera kuchitidwa opaleshoni yochotsa mimba…”
Anne:
“Kuyambira ndili wamng’ono, ndimadziwa kuti ndine mtsikana wa DES chifukwa amayi anga anandiuza komanso ankandisamalira ndi dokotala wachikazi ku Toulouse. Pazaka 16, ultrasound yoyamba idawulula chiberekero chooneka ngati T ndi thumba losunga mazira la micropolycystic. Pambuyo pake, ndidzauzidwanso za adenosis, ndipo, kwa zaka zambiri, ndimakhala ndi zozungulira zocheperako ndipo nthawi zambiri zimakhala zowawa kwambiri. “
Martine
"Ndine mtsikana wa distilbene ndipo ndidatha kukhala ndi ana awiri. Ndinagona kuyambira mwezi wachitatu wa mimba ndipo ndinabereka miyezi 7. Koma lero ndili ndi ana aakazi aŵiri azaka 2 ndi 5 amene ali olimba. Kotero ndizotheka kukhala ndi ana ngakhale kuti distilbene. “
Amélie
"Ndili ndi zaka 33 ndipo, monga atsikana ena ambiri a DES, ndili ndi vuto la maliseche (chiberekero chofanana ndi T, ectropion mu khomo lachiberekero, endometriosis, dysplastic ndi polycystic ovaries, anovulatory cycles, etc.). Mwachidule, ndizovuta bwanji kukhala ndi mwana !!! Pambuyo pa zaka zingapo zovuta, kuchokera ku maopaleshoni kupita ku maopaleshoni, kuchokera ku chithandizo kupita ku chithandizo, tinatha kukhala ndi mwana wozizwitsa, ngakhale kuti anali ndi mimba yogona, yowopsya kwambiri, yodetsa nkhawa kwambiri yomwe tsiku lililonse linkawerengedwa.
Mwana wanga anabadwa asanakwane pa masabata 35 ali ndi pakati, mimba yanga inali mulimonse buluni weniweni wokonzeka kuphulika ... Moyo ndi DES ndi filimu yeniyeni yokhotakhota, samatisiya tokha! “
Pascale
Ndili ndi zaka 36 ndipo mwana wanga wamkazi adzakhala ndi zaka 13. Ulendo wanga unali woopsa ngati atsikana ambiri a distilbene: kupititsidwa padera kuwiri, woyamba ali ndi pakati pa miyezi 5 ndi theka, kamtsikana kamene kanabadwa wamoyo koma osapulumuka. Chaka chimodzi pambuyo pa padera lachiwiri pa miyezi 4 ndi theka ya mimba, gynecologist ankafuna kudziwa komwe angachokere ndipo pambuyo pa hysterography, venography ... chigamulo chinafikira: distilbene!
Kwa mwana wanga wamkazi, ndinayenera kuvala chingwe chomwe chinachotsedwa chifukwa cha kukomoka kwambiri, ndipo anabadwa milungu isanu isanakwane. Mimba yanga inali yovuta kwambiri: kutulutsa magazi, kukomoka, kugona pabedi kuyambira koyambira mpaka kumapeto, osatchulanso kukhala mobwerezabwereza m'chipatala. Ndipo kumeneko, ndinangophunzira kuti ndili ndi dysplasia ya chiberekero ndipo ndiyenera kuchitidwa opaleshoni. Amene ali ndi udindo ayenera kulipira chifukwa cha zowonongeka zomwe anawononga zaka 30 zapitazo ndi zowonongeka zomwe akuwonongabe. “