Kodi mumadziwa chikondi? Kodi ufulu mumaudziwa? Kodi mumalakalaka chimodzi, kwa chimzake, pokhala ndi tanthauzo lenileni la chilichonse? Ndinkaganiza kuti ndimadziwa chilichonse. Sindinadziwe kalikonse. Palibe chiopsezo, kapena kuthamanga, kapena ufulu weniweni. Unali moyo wa amayi anga umene unandiphunzitsa zimenezo.
Ndinakwatiwa ndi Nicolas, ndipo tinali ndi ana asanu ndi mmodzi abwino kwambiri. Ndiyeno tsiku lina tinaphonya chinachake. Tinadzifunsa tokha funso la mwana wotsatira, wachisanu ndi chiwiri: ndipo chifukwa chiyani? Mwamsanga, lingaliro lotengera linafika. Umu ndi momwe mu 2013, tinalandirira Marie. Marie ndi mwana yemwe ali ndi matenda a Down syndrome amene tasankha kumulandira ngakhale titachenjezedwa, kuyang'ana m'mbali ... Inde, ndife chonde, ndiye titani? Anthu ankationa ngati openga. Mwana wolumala nayenso! Tinamenyana koopsa kuti tsiku lina tipeze ufulu wolandira Marie wathu wamng’ono. Osasankha kumasuka kuti zonse zipitirire kuyenda mwachizolowezi, komanso chitonthozo chachikulu cha moyo watsiku ndi tsiku popanda zodabwitsa zenizeni. Ndinazindikira kuti si nthawi zonse chikhumbo chimene chiyenera kulamulira moyo wathu, komanso kuti kusankha n'kofunika. Kodi sizingakhale zophweka kungokhala panjira? Derailing, nthawi zina, ndiyo njira yabwino yowongoka.
Aliyense anavomera ndipo, nthawi zambiri, tinalonjezedwa kutayika bwino m'banja lathu lokongola chifukwa cha kukhalapo kwa mwana wina. Koma mosiyana ndi ndani? Zokwanira ? Marie ali ndi encephalogram yofanana, kaya akugona kapena ali maso: mpira wa crystal wachipatala unaneneratu kuti iye akupita patsogolo pang'ono, ngati alipo… Lero, Marie ali ndi zaka 4. Amadziwa "roronette", liwu lomwe amagwiritsa ntchito mosangalala potanthauza scooter yake. Amazembera, amapita patsogolo. Watipangitsa ife kupita patsogolo kwambiri… kulawa chilichonse chachilendo kuwirikiza chikwi mwamphamvu kuposa ife. Kumuwona akulawa galasi lake loyamba la soda zinali zolemetsa. Kusangalala kumatengera kukula kwake! Iye ankadziwa kukhazikitsa ubale ndi aliyense m’banjamo. Ndipo tiwonetseni tonse kuti kusiyana sizomwe timaganiza. Kusiyana pakati pa iye ndi ife ndikosavuta kuti Marie ali ndi zina zambiri. Kukhala ndi moyo sikutanthauza kukhalabe pa zimene munthu wakwanitsa kuchita komanso zimene munthu akudziwa. Chikondi chenicheni ndi amene amawona chowonadi cha wina, ndipo izi ndi zomwe zidatichitikira ife ndi iye, ndi anthu onse omwe ali ndi chilema chachikulu kapena chochepa chomwe tinachipeza pambuyo pake. Tsiku lina, Marie anakwiya ndipo ndinaona adiresi yake chinachake chosaoneka. Ndinayenda ndipo ndinamva kuti akunyoza ntchentche yomwe inatera pa chakudya chake. Ananena zonse zomwe anali nazo pamtima pa ntchentche iyi yomwe inkamujomba mbale yake. Kuyang'ana kwake kwatsopano, kwatsopano komanso koyenera pazinthu, zoonanso, kunatsegula malingaliro anga, malingaliro anga, mpaka kalekale. Mwachidule ! Ife tiri chonchi, tiyenera kuchita motere…Chabwino ayi. Ena amachita mosiyana, ndipo chikhalidwe sichili paliponse. Moyo si matsenga, umaphunzitsa. Inde, tikhoza kulankhula ndi ntchentche!
Potengera chokumana nacho chodabwitsa chimenechi, ine ndi Nico tinaganiza zotengera mwana wina ndipo umu ndi mmene Marie-Garance anafikira. Nkhani yomweyo. Ifenso tikanakanidwa. Mwana wina wolumala! Patapita zaka ziwiri, tinagwirizana ndipo ana athu analumpha ndi chisangalalo. Tinawafotokozera kuti Marie-Garance sadya monga ife, koma ndi gastrostomy: ali ndi valavu m'mimba, yomwe chubu yaying'ono imatsekedwa panthawi ya chakudya. Thanzi lake ndi lofooka kwambiri, tikudziwa, koma titakumana naye kwa nthawi yoyamba, tinachita chidwi ndi kukongola kwake. Palibe mbiri yachipatala yomwe idatiuza kuti mpaka pamenepo, mawonekedwe ake, nkhope yake yokongola.
Ulendo wake woyamba, ndinachita naye maso ndi maso, ndipo nditapeza kuti ndikukankhira woyendetsa galimoto pamsewu wafumbi, nthawi yomweyo wotsekedwa ndi chingwe cholemera kwambiri, ndinamva mantha akundigwira ndi kufuna kusiya chirichonse. Kodi ndikudziwa momwe ndingathetsere vuto lalikululi tsiku lililonse? Nditachita mantha, ndinakhala wosalankhula, ndikuyang'ana ng'ombe zikudya m'munda wapafupi. Ndipo mwadzidzidzi ndinayang'ana mwana wanga wamkazi. Ndinkayembekezera kupeza m’maso mwake mphamvu zopitirizira, koma maso ake anali atatsekeka moti ndinazindikira kuti sindinali kumapeto kwa mavuto anga. Ndinapitanso mumsewu, msewu wawung'ono kwambiri moti woyendetsayo ananjenjemera, ndipo pamapeto pake, Marie-Garance anayamba kuseka! Ndipo ndinalira ! Inde, sikuli kwanzeru kuyamba ulendo woterewu, koma chikondi chenicheni sichitanthauza kanthu. Ndipo ndinavomera kulola kutsogoleredwa ndi Marie-Garance. CHABWINO, ndizovuta kusamalira mwana wina yemwe akufunika chithandizo chamankhwala chapadera, koma kuyambira tsiku limenelo, kukaikira sikunandidzazenso.
Ana athu aakazi aŵiri omalizira si mikangano yathu iŵiri, koma ndi amene asinthadi miyoyo yathu. Zowona, Marie adatilola kumvetsetsa kuti munthu aliyense ndi wosiyana ndipo ali ndi mawonekedwe ake. Marie-Garance ndi wofooka kwambiri mwakuthupi ndipo alibe ufulu wodzilamulira. Tikudziwanso kuti nthawi ikutha, ndiye adatipangitsa kuti timvetsetse kutha kwa moyo. Chifukwa cha iye, timaphunzira kusangalala tsiku ndi tsiku. Sitikuwopa mapeto, koma pakumanga kwamakono: ndi nthawi yokondana, nthawi yomweyo.
Zovuta ndi njira yopezera chikondi. Chochitika ichi ndi moyo wathu, ndipo tiyenera kuvomereza kukhala ndi moyo wamphamvu. Komanso, posachedwapa, Nicolas ndi ine tidzalandira mwana watsopano kuti adzatisangalatse.