Zamkatimu
Muscular dystrophies - Malo osangalatsa komanso malingaliro a dokotala
Kuti mudziwe zambiri muscular dystrophiess, Passeportsanté.net imapereka mayanjano osankhidwa ndi malo aboma. Mudzapeza pamenepo Zina Zowonjezera ndi kulumikizana ndi madera kapena magulu othandizira kukulolani kuti muphunzire zambiri za matendawa.
zikhomo
France
French Association motsutsana ndi Myopathies (AFM)
Association idapangidwa mu 1958 ndi odwala ndi achibale a odwala, ndi cholinga chochiritsa matenda a neuromuscular ndikuchepetsa kulumala kwa omwe akhudzidwa.
www.afm-telethon.fr
MANAMATI
The osowa matenda portal
www.ana amasiye.Fr/
Canada
Muscular Dystrophy Canada
Association omwe cholinga chake ndikupititsa patsogolo kafukufuku wa matenda a neuromuscular komanso kuthandiza odwala ndi mabanja awo.
www.minofu.ca
United States
Mgwirizano wa Muscular Dystrophy
www.mdausa.org
Lingaliro la adotolo
Monga gawo lamachitidwe ake abwino, Passeportsanté.net ikukupemphani kuti mupeze malingaliro a akatswiri azaumoyo. Dr Jacques Allard, dokotala wamkulu, amakupatsani malingaliro ake pa kupweteka kwa thupi :
Langizo langa limapangidwira makamaka kwa makolo omwe ali ndi nkhawa ndi kukula kwa mwana wawo. Ngati mwana wanu akuvutika kuyenda, kuthamanga, kutsika pansi kapena kukwera masitepe, zikuwoneka zovuta kapena kugwa kawirikawiri, ndi bwino kukaonana ndi dokotala, chifukwa izi zikhoza kukhala zizindikiro zoyamba za muscular dystrophy. . Akapezeka, mankhwala ndi kukonzanso zingathandize kuchepetsa zizindikiro komanso kuchepetsa kukula kwa matenda. Pomaliza, ndikupangiranso kukaonana ndi dokotala yemwe amadziwa bwino za majini. Dr Jacques Allard MD FCMFC |